Consensus Conferences

14

Merkel Cell

Carcinoma in Latin America


+
40

ES/WGS for diagnosing

RDs in Brazil


+
41

Newborn Screening for

RDs in Latin America


+
48

Genetic and Molecular Testing

for RDs in Latin America


+
49

Policy for RD Caregivers

in Latin America


+
50

Social Participation in HTA

for RD in Latin America


+
54

AQP4-IgG testing

for NMOSD in Brazil


+

Workshops 

7

HEMOPHILIA


+

Task Forces

1

Rare Disease Treatments

in Latin America

+
+

Awareness Projects

1

The Awakening of Rare Diseases in Latin America

in Latin America

+
+

Policy Forums and Webinars

1

Value-based health care models

in Brazil and Colombia

+
+
2

The Awakening of

Rare Diseases Webinar

+
+
3

World Rare Disease

Day Round Tables

+
+
4

Best Practices: Renewing Rare Disease Trials

in the Age of COVID-19

+
+

Landscape Analysis

1

Brazilian Access Landscape

for Orphan Drugs (Survey)

+
+

Congresses 

1

LATAM Congress

in Rare Diseases

+
+