EVENT HIGHLIGHTS
The 2nd Congress on Rare Diseases for Latin America and the Caribbean – Less Than a Month Away!
Led by The Americas Health Foundation, and co-hosted by ERCAL, FECOER, and Pontificia Universidad Javeriana, this year’s congress is taking place in Bogotá, Colombia, on October 16 and 17, 2024. This landmark event will build on the success of the inaugural congress by focusing on practical solutions to bridge gaps in rare disease care across Latin America.
Attendees will hear from over 49 key opinion leaders from around the globe, including physicians, regulators, advocacy leaders, policy and decision makers, industry representatives, among others, as they participate in panels, such as:
- Shaping Future Policies for Rare Diseases in Latin America
- Patient Registries and Clinical Studies: Unlocking Opportunities and Overcoming Challenges
- Best Practices for HTA Assessments for Rare Diseases
- Bridging the Gap: Ensuring Access to Innovation
- Global Legislative Practices and Innovative Financing Strategies for Rare Diseases
This congress is a crucial opportunity to network and exchange ideas on improving rare disease diagnosis, care, and policy in the region.
VIEW THE FULL AGENDA HERE.
And, if you haven’t yet, REGISTER HERE.
AHF Partners with the World Orphan Drug Congress (WODC) Europe 2024
AHF is proud to be a supporting partner for the World Orphan Drug Congress (WODC) Europe, the largest event of its kind, taking place on October 22-25, 2024, in Barcelona, Spain.
With over 2,000 attendees, 250 speakers, and 130 exhibitors, this event will bring together leaders in orphan drugs and rare diseases, from regulation and policy to gene therapy and patient advocacy. Attendees include key decision-makers from R&D, regulatory bodies, and patient organizations.
Apply now for a free VIP pass if you are part of a patient group, charity, government agency, or regulatory body here.
AHF Partners with the World Vaccine Congress (WVC) Europe 2024
As a supporting partner of the World Vaccine Congress Europe, AHF is excited to join the largest global meeting on vaccines. This year’s event will be held from October 28-31, 2024, at Fira de Barcelona Montjuïc.
The Congress will feature 3,000+ attendees, 280 speakers, and 150 exhibitors. Topics will range from basic research to commercial vaccine manufacturing, offering a full-spectrum view of the vaccine landscape.
Join us at this essential gathering to explore the latest advancements in vaccines.
ONGOING WORK IN RARE DISEASES
As we gear up for these major events, AHF is currently leading other impactful projects aimed at addressing rare diseases:
Thyroid Eye Disease Patient Journey Mapping in Brazil:
AHF is conducting an in-depth analysis of the patient journey for those affected by Thyroid eye disease (TED) in Brazil. TED is a complex condition requiring a multidisciplinary approach, and our mapping aims to uncover key barriers and disparities that patients face in both private and public healthcare systems.
This project will provide actionable insights into systemic delays and discrepancies in care, helping us develop targeted interventions to improve access and quality of care for TED patients in the region.
Educational Initiative: Increasing Access to Genomic Medicine for Rare Diseases in Brazil
Building on themes discussed at the WHO/PAHO regional meeting, AHF has recently launched an educational initiative focused on operationalizing genomic medicine strategies for rare diseases in Latin America. This initiative will offer a platform for experts to discuss challenges, best practices, and policy recommendations for expanding genomic testing and treatment protocols.
Key topics include:
- Foundational infrastructure for genomic medicine
- Capacity building and human resource development
- Public engagement and clinician education
- Lessons from global initiatives
The goal is to ensure that the outcomes of this initiative are scalable and sustainable, promoting equitable access to genomic medicine across the region.
VACCINES BEAT UPDATE
Here is your monthly reminder not to miss the latest issue of our Vaccines Beat Newsletter. This month’s issue includes:
- Coffee with the Expert with Professor Stanley Plotkin
- Mpox: a dangerous game of clades and vaccine inequity
- Simplified Rabies Vaccine Schedules
- More
STAY TUNED
AHF is committed to creating impactful, lasting change in public health through collaboration, education, and evidence-based policy solutions. We strive to drive innovation and access to healthcare across the Americas and beyond.
